The Butterfly Child (2015) - Jonathan Pitre suffered from a rare genetic skin condition commonly referred to as "the worst condition you've never heard of". #TheButterflyChild #JonathanPitre
14-year-old Jonathan Pitre is an avid hockey fan who suffers from Epidermolysis Bullosa, one of the most painful conditions known to modern medicine. But his courage and determination to live is unlike anything in sports. To learn more, or to donate to families affected by EB, go to http://debracan...
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